Oct 302016
 

SFV Bone Marrow Drive For Adam Krief

The day has arrived and Anything L.A. Magazine held the much anticipated bone marrow drive for Adam Krief. A representative of Be The Match® (National Marrow Donor Program®), was there with testing kits as well as plenty of informational, educational and promotional materials. There were volunteers eager to be tested to hopefully be the match for Adam Krief. KTLA’s (Channel 5) reporter came by as well.

Anything L.A. Magazine SFV Bone Marrow Drive For Adam Krief

Anything L.A. Magazine SFV Bone Marrow Drive For Adam Krief: All ready to test and educate half an hour BEFORE the drive! (Hope H. from Be The Match has done an excellent job!)

SFV Bone Marrow Drive For Adam Krief

Ready to get tested? (Pictures of donors not shown to protect donors’ privacy.)

KTLA came to cover SFV Bone Marrow Drive For Adam Krief

KTLA at work during SFV Bone Marrow Drive For Adam Krief

KTLA at work during SFV Bone Marrow Drive For Adam Krief

KTLA interviewing Hope H. during our SFV Bone Marrow Drive For Adam Krief

KTLA interviewing Hope H. (Be The Match) during our SFV Bone Marrow Drive For Adam Krief

KTLA, Be The Match and Editor of Anything L.A. Magazine

Be The Match, KTLA and Editor of Anything L.A. Magazine

Here is what we learned:

  • what’s really involved in stem cell transplants
  • why one has to join the National Marrow Donor Program to get tested to be a match for a particular patient
  • why so many people volunteer to get tested and become donors
Hope H. represented Be The Match (National Marrow Donor Registry) during our drive

Hope H. represented Be The Match (National Marrow Donor Registry) during our drive and was with us to administer compatibility tests

Having spoken with Hope H., the Be The Match® representative who joined us for our drive, we now know that either form of bone marrow donation is quite easy on the donor. The PBSC donation (which consists of a specialized blood donation during which stem cells for the transplant are filtered out from the donor’s blood) is simple, fast and requires no recovery. The more complex marrow donation (performed under general anesthesia involves bone marrow extraction using a thin needle, NOT a drill!) is usually followed by a few days of minor discomfort easily relieved with over-the-counter pain reliever. Considering the fact that the payoff is saving a human life, either one is a bargain.

Prior to our marrow drive we were wondering why a person has to join the National Marrow Donor Registry – and make themselves available to donate to any patient in need – to be tested as a possible match for a specific patient. Here is what we learned, you don’t have to join the registry, if you prefer to pay for the test to a private lab (the cost is about $300) you can do so without joining the Marrow Donor Registry. However the odds of being a match for a specific patient are extremely low. Members of the registry who are between 18 and 44 years of age get tested free of charge, provided they are committed to saving any patient in need.

We were wondering who and why would volunteer to join the National Marrow Donor Registry and make themselves available to any patient who needs bone marrow transplant. (It was easy for us to relate to ONE person’s plight. Knowing a face and a story makes volunteering easy. “Any patient” has no face and no story to relate to.) We learned that the most motivated volunteers / donors are people personally touched by a loved one’s fight with cancer. They get tested to save a loved one only to find out that they are not a match. Then, they are eager to become donors for anyone else in the hope that others will be as willing to donate to and save their loved one. (We were surprised to learn that Hope H., our Be The Match representative, not only is a registered marrow donor herself, but has personal reasons to be passionate about – and dedicated to – the cause of treating cancer patients with stem cell therapy.)

The SFV Bone Marrow Donor Drive For Adam Krief was an eye-opening experience for the staff of Anything L.A. Magazine. Even though we are passionate about helping Adam Krief for quite a while now and expanded considerable effort into organizing the drive to his benefit, we were taken aback by our own ignorance of stem cell transplants. The experience of holding the marrow drive changed our view of the National Marrow Donor Registry and its importance. Perhaps emboldened by our encounter with the need for marrow transplants and their value as a treatment for many types of cancer, we – the staff of Anything L.A. Magazine – now believe that making marrow compatibility testing mandatory for all United States citizens might be a good idea. None of us knows whether we – or someone we love – will develop cancer that can be cured with a stem cell transplant, at some point in life. Now, more familiar with the specifics, we believe that it should be possible to “shop” and FIND a matching donor as quickly as purchase a prescription. If we were all in the National Marrow Donor Registry NO ONE would have to die while searching and waiting for a matching donor. Having such a law on the books wouldn’t be exploitative because living tissue regenerates itself (it’s a renewable resource!) but its availability and ease of access could save time and lives of cancer patients.

Anything L.A. Magazine is just that: a magazine. We don’t haveAnything L.A. Magazine SFV Bone Marrow Drive For Adam Krief legislative power. But we are free to make suggestions to our readers AND legislators. Consider getting tested if you are between 18 and 44: a mass participation in the National Marrow Donor Registry could save your own life or the life of someone you love down the line.

Anything L.A. Magazine thanks all who contributed to the success of our SFV Bone Marrow Drive For Adam Krief. Whether you volunteered and got tested or helped to spread the word: THANK YOU! (Our Special Thanks go to @IronmanMann, @meghubb and @ArtemisPics on Twitter. Another very Special Thanks to KTLA and the KTLA’s reporter who came by during our drive. The reporter was not only well-informed and kind but understood the importance of the cause.) The saying has it “It takes a village to raise a child.” It takes several villages to save a life of a cancer patient. Thousands participated in the effort already. We’ve made a modest contribution, too. Anything L.A. Magazine is sincerely grateful for your support for Adam Krief and our marrow drive!

Anything L.A. Magazine’s Editor / E. Elrich
Photo credit: Wolf Kesh

 

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Oct 082016
 
Adam Krief with his young family

Adam Krief with his young family. He DOESN’T want to leave them behind.

Adam lives in Los Angeles. He is a member of our community. Anything L.A. Magazine serves millions of Angelenos and asks YOU to get tested as a potential donor for Adam Krief. We are organizing a Bone Marrow Donor Drive in the hope of finding a match for Adam Krief. (The drive will take place on Saturday, October 29th 2016 between 10 am and 3 pm in a Private Residence at 6430 Varna Ave. in Valley Glen, CA 91401.)

The test itself is only a Q-Tip swab of saliva taken from the inside of a cheek. No pain and no loss. There is something else you also need to know, even though the bone marrow donor drive is organized to save Adam Krief’s life, the donor law is inclusive and non-discriminatory. No one can get tested to be a match for Adam, only. Anyone willing to get tested becomes registered in the bone marrow registry. You won’t make an actual donation – or be asked to make one – unless you are a match for someone in need. If you are not a match for Adam, you may be a match for someone else and be called to donate. (You’ll always have the option to agree or not.)

Here is the full information about the test:

  • The compatibility test consists of two steps: signing up for the Be The Match National Bone Marrow Registry and a few swabs inside the cheek. The test is really fast, simple and painless.
  • The cotton swabs get sent for analysis. You may or may not be a match for Adam Krief. You may be a match for someone else.

What if you are a match? (Either for Adam or someone else?) First and foremost, you need to know that the process and recovery are easier, faster and generally, less painful for the donor than for the recipient.

There are two methods of donating:

PLEASE NOTE: The donation that Adam Krief needs is the NON-SURGICAL, peripheral blood stem cell donation.

 

The PBS (peripheral blood stem cell) method: “70% of the time donors are asked to give stem cells present in their blood”. (Quoted from MarrowDrives.org)

The PBS (peripheral blood stem cell) method
Additional information about donating peripheral blood stem cells

The bone marrow donation: “30% of the time, donors are asked to give stem cells extracted from their bone marrow. (The majority of bone marrow donations are for children as they experience a higher success rate with a bone marrow transplant as opposed to PBSC.)” (Quoted from MarrowDrives.org)

The bone marrow donation
Additional information about donating bone marrow

PLEASE NOTE: The donation that Adam Krief needs is the NON-SURGICAL, peripheral blood stem cell donation.

Read more:

 

THESE CONDITIONS PREVENT YOU FROM JOINING:

• Hepatitis B or C
• HIV
• Organ, marrow or stem cell transplant recipient
• Stroke or TIA (transient ischemic attack)

THESE CONDITIONS REQUIRE FURTHER EVALUATION:

• Autoimmune illness
• Brain injury or surgery
• Blood cancer or disorder
• Cancer
• Chronic neck, back, hip or spine pain
• Diabetes
• Heart diseases, a heart attack, or other heart-related issues
• Currently taking certain prescribed medications on a regular basis for pain, heart issues, cancer, and other serious diseases

Anything L.A. Magazine’s Bone Marrow Donor Drive for Adam Krief is organized in alliance with – and support of – Be The Match®, operated by the National Marrow Donor Program® (NMDP)

Be The Match®, operated by the National Marrow Donor Program® (NMDP), is a nonprofit organization dedicated to facilitating bone marrow transplants in the United States from volunteer unrelated donors to patients with leukemia, aplastic anemia and other potentially deadly diseases.

Be The Match® works to help every patient get the life-saving transplant they need. As a leader in advancing treatments for those facing life-threatening blood cancers, Be The Match® provides ground-breaking research, innovative technologies, patient support and education that save lives.

Anything L.A. Magazine’s Editor / E. Elrich

 

 

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Oct 082016
 
Adam Krief with his wife

Adam Krief with his wife Lia

Adam Krief is 31. He loves his wife and their 3 small children. He has a lifelong passion for L.A. Lakers. He also has blood cancer. A matching bone marrow donation – in his case! – is THE CURE. He will die unless a matching bone marrow donor is found, QUICKLY. See Adam before hospitalization.

Adam was diagnosed on July 1st of this year with a rare – and terminal – type of blood cancer (primary myelofibrosis). He is being given chemotherapy not as a treatment but to afford him time to find a matching donor. The donation that Adam Krief needs is a peripheral blood stem cell donation. (PBS is a type of non-surgical blood donation.) Out of the over 13 million people currently registered as donors, none is a match for Adam. Several thousand people have already stepped up to help, but so far no match was found. Adam Krief’s cause is supported by communities throughout the United States and internationally. Kim Kardashian asked her fans to get tested for a possible match for Adam Krief. The effort is snowballing.

According to BeTheMatch.org, blood cancer is the number two cause of cancer death in the United States. When it comes to children, no other disease kills more children than blood cancer.

Read more:

Anything L.A. Magazine’s Bone Marrow Donor Drive for Adam Krief is organized in alliance with – and support of – Be The Match®, operated by the National Marrow Donor Program® (NMDP)

Be The Match®, operated by the National Marrow Donor Program® (NMDP), is a nonprofit organization dedicated to facilitating bone marrow transplants in the United States from volunteer unrelated donors to patients with leukemia, aplastic anemia and other potentially deadly diseases.

Be The Match® works to help every patient get the life-saving transplant they need. As a leader in advancing treatments for those facing life-threatening blood cancers, Be The Match® provides ground-breaking research, innovative technologies, patient support and education that save lives.

Anything L.A. Magazine’s Editor / E. Elrich

 

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Oct 082016
 

Be The Match®, National Marrow Donor Program®

We all know that organ donation save lives. When we think of organ donation, we usually associate it with the decision made by a family at the end of someone’s life. But living donor donations are becoming increasingly common. We frequently see on the news how a loved one – or a friend – of a patient in need donated a kidney, a lung lobe or even a part of a liver. We have also seen cases of celebrities (i.e. George Lopez’ then wife donated a kidney to him).

Many of us have asked ourselves whether we’d be able to make such a sacrifice to save someone’s life. When it comes to an organ transplant, we are talking about major surgery performed under a general anesthesia, a prolonged recovery and a lifetime of living with less than a complete set of organs. Such a donation takes courage. It is a sacrifice made by more and more people – even total strangers – today. To me these people are heroes because the prospect of living with fewer organs than my body was originally designed to have would worry me.

With that out of the way, let’s change the subject for a moment. The Earth has different types of natural resources. Our oil, coal or water resources are limited and can be exhausted. Other resources such as wind, solar energy or bamboo are renewable resources. We can use the latter and because renewable resources replenish themselves – so to speak – they won’t become exhausted in the foreseeable future. You guessed it: there is a parallel between the brief digression into the topic of natural resources and life-saving donations.

Living donor’s organ donation is not the only way to save lives, cure diseases and help people. Living donor’s tissue donation (blood or bone marrow) is the other. The main difference between these two types of donations is – yes, I am simplifying a bit! – that once you donate a kidney or a lung lobe (it isn’t true for a partial liver donation) you have exhausted a part of your natural resources. When you donate tissue, you’re donating your renewable resource. Tissue donation requires generosity but it won’t leave you worse for wear. The life-saving bodily liquids you can donate replenish themselves (your body regenerates them), under certain circumstances the renewal stimulated by the donation is actually beneficial to the donor’s health. There is more, you could donate blood or bone marrow – without the fear of depleting your own resources – several times and save more than one person’s life!

To summarize:

  • a living donor organ donation is a donation of a limited natural resource
  • a living donor tissue donation is a donation of a renewable natural resource

The first one involves a risk and is a major sacrifice. The second – not less generous – is an act of sharing what you have to spare. I’m not diminishing the value or importance of tissue donation: it is life-saving. I’m not saying that it is entirely pain or hassle-free, there is some. Just like a kidney or lung lobe’s donation, tissue donation is sharing and life-saving but without the potential risk of diminishing your quality of life now or later.

There are other ways of looking at living donor tissue donation:

  • If we have tissue that’s a renewable resource, isn’t not donating it selfish?…. Isn’t sharing a renewable resource a moral obligation of sorts?
  • Why do some people have to die because those who could save them (who are in effect, THE CURE!), simply don’t care? Is it right or FAIR? We don’t control the skin or eye color we’re born with and we don’t control what disease we are dealt. (By the way, the most common CHILDHOOD cancer is blood cancer.) Isn’t it like dying from hunger in a well-stocked grocery store?….

 

What’s involved in a bone marrow donor test and an actual bone marrow donation?

 

Here is the full information about the test:

  • The compatibility test consists of two steps: signing up for the Be The Match National Bone Marrow Registry and a few swabs inside the cheek. The test is really fast, simple and painless.
  • The cotton swabs get sent for analysis. You may or may not be a match for Adam Krief. You may be a match for someone else.

What if you are a match? (Either for Adam or someone else?) First and foremost, you need to know that the process and recovery are easier, faster and generally, less painful for the donor than for the recipient.

There are two methods of donating:

 

PLEASE NOTE: The donation that Adam Krief needs is the NON-SURGICAL, peripheral blood stem cell donation.

 

The PBSC (peripheral blood stem cell) method: “70% of the time donors are asked to give stem cells present in their blood”. (Quoted from MarrowDrives.org)

The PBS (peripheral blood stem cell) method
Additional information about donating peripheral blood stem cells

The bone marrow donation: “30% of the time, donors are asked to give stem cells extracted from their bone marrow. (The majority of bone marrow donations are for children as they experience a higher success rate with a bone marrow transplant as opposed to PBSC.)” (Quoted from MarrowDrives.org)

The bone marrow donation
Additional information about donating bone marrow

 

PLEASE NOTE: The donation that Adam Krief needs is the NON-SURGICAL, peripheral blood stem cell donation.

 

THESE CONDITIONS PREVENT YOU FROM JOINING:

• Hepatitis B or C
• HIV
• Organ, marrow or stem cell transplant recipient
• Stroke or TIA (transient ischemic attack)

THESE CONDITIONS REQUIRE FURTHER EVALUATION:

• Autoimmune illness
• Brain injury or surgery
• Blood cancer or disorder
• Cancer
• Chronic neck, back, hip or spine pain
• Diabetes
• Heart diseases, a heart attack, or other heart-related issues
• Currently taking certain prescribed medications on a regular basis for pain, heart issues, cancer, and other serious diseases

 

Anything L.A. Magazine’s Bone Marrow Donor Drive for Adam Krief is organized in alliance with – and support of – Be The Match®, operated by the National Marrow Donor Program® (NMDP)

Be The Match®, operated by the National Marrow Donor Program® (NMDP), is a nonprofit organization dedicated to facilitating bone marrow transplants in the United States from volunteer unrelated donors to patients with leukemia, aplastic anemia and other potentially deadly diseases.

Be The Match® works to help every patient get the life-saving transplant they need. As a leader in advancing treatments for those facing life-threatening blood cancers, Be The Match® provides ground-breaking research, innovative technologies, patient support and education that save lives.

Anything L.A. Magazine’s Editor / E. Elrich

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Great piece!

★★★★★
5 5 1
This is the first time that I read an article on bone marrow donation that actually explains the procedure well. The advocacy section of the article is wise and eye-opening. Please continue writing. Your writing has the power to save lives.
Oct 082016
 
Adam Krief With Two Of His Children

Adam Krief With Two Of His Children

Anything L.A. Magazine helped spread the news about Adam Krief’s pursuit of a matching bone marrow donor. We watched the pursuit’s progress. Thousands of people came forward to get tested. (There are MANY caring and compassionate people out there!) Unfortunately, no matching donor was found, yet.

Having watched the search for a matching donor from the sidelines, Anything L.A. Magazine is now preparing to hold a Bone Marrow Donor Drive of our own in the hope of finding a match for Adam Krief, before it’s too late.

Bone Marrow Donor Drive isn’t quite what the name suggests. No one will be donating bone marrow during the drive. It is really about getting TESTED. The test involves a Q-Tip swab inside a cheek: no blood or pain is involved!

Consider getting tested! One of us is THE CURE for Adam Krief. Right now, it’s about Adam. Considering the fact how common and deadly blood cancer is, down the line it might be about someone you love.

Read more:

Anything L.A. Magazine’s Bone Marrow Donor Drive for Adam Krief is organized in alliance with – and support of – Be The Match®, operated by the National Marrow Donor Program® (NMDP)

Be The Match®, operated by the National Marrow Donor Program® (NMDP), is a nonprofit organization dedicated to facilitating bone marrow transplants in the United States from volunteer unrelated donors to patients with leukemia, aplastic anemia and other potentially deadly diseases.

Be The Match® works to help every patient get the life-saving transplant they need. As a leader in advancing treatments for those facing life-threatening blood cancers, Be The Match® provides ground-breaking research, innovative technologies, patient support and education that save lives.

Anything L.A. Magazine’s Editor / E. Elrich

 

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